While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey.

I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.

Every clinical trial must go through many layers of review, each intended to protect your safety. We go beyond what is required with additional layers of protection for CF clinical trials. At each ...

Researchers conduct clinical trials by following a protocol, a detailed plan that explains how a trial will work, what will be done during the trial, and why. All clinical trials have guidelines about ...

Have questions about cystic fibrosis clinical trials? The Clinical Trial Navigator is a person who can help you get the answers you need. 2 min read The Clinical Trial Navigator is a designated person ...

It is your right to know everything about your role in a clinical trial. The informed consent process will help you judge whether a CF study is right for you. The informed consent process is ongoing ...

Before any clinical trial begins, you will meet with the research team and have a chance to learn more about the study. You should ask as many questions as you need to understand the study purpose, ...

If you walk into your local grocery store or gas station, you will likely come across an area where lottery tickets are for sale. Along with the numerous games, you are commonly going to find a ...

During the 18 months I spent waiting for a double-lung transplant, I researched everything I could about the process. I asked post-transplant patients about the pain of the surgery, waking up, the ...

Okay! I'm about to spill some tea -- the tea about being a Black girl with cystic fibrosis. CF and I are pretty familiar with each other, so I refer to her as Cynthia Fibrosis. Cynthia and I have ...

Former Executive Vice President and Chief Operating Officer, Cystic Fibrosis Foundation Marc Ginsky was the executive vice president and chief operating officer of the Cystic Fibrosis Foundation.