Hemlibra safely reduces bleeding episodes in people with hemophilia A without inhibitors, per a review study that confirmed ...

Building and nurturing resilience in children with hemophilia Growing up, I was coddled — constantly protected from the world, from pain, and often, from myself. My parents loved me deeply, but ...

I realized that what I thought was logic didn’t make sense once I started noticing nasty bruises on his arms and legs. Part of me felt defeated when, no matter how hard I tried, I couldn’t wish away ...

My Hate-Love Relationship with Hemophilia I don’t think anyone likes having a chronic disease. I have good days, and I have bad days. Thankfully, the good days outnumber the bad ones. There are days ...

I’ve lost count of how many times I’ve been met with blank stares, skepticism, or outright dismissal. Instead, I’ve learned to say, “I have a bleeding disorder.” It’s safer. It avoids the ...

An early study demonstrated that over three years, the gene therapy increased FIX levels, and reduced bleeding episodes and the use of FIX replacement therapies by more than 90%. Reduction in number ...

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Therapy yields sustained increase in key enzyme The open-label Phase 3 FRONTIER5 safety study enrolled 61 adults and adolescents 12 years and older with hemophilia A who had previously received ...

Our family’s love for live theater is a bond we cherish. We make it a point to attend as many shows as we can in our area. I vividly recall the first time we saw the musical “Wicked” onstage. My ...

Analyzing hemophilia A care in China To address this, they analyzed the clinical characteristics, treatment patterns, and healthcare-related costs for hemophilia A patients, drawing on data from 3,164 ...

The moment of escaping the heat into the cool brings more than physical relief. It’s a moment of sacred pause. The body relaxes, shoulders soften, and headaches begin to lessen. The best part is when ...

This permission to ask questions without fear changed me. I slowly began to find my voice. It wasn’t because I became an expert equivalent to a medical doctor, but because I learned that courage isn’t ...