While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey.
On behalf of the undersigned NAIC Consumer Representatives, we offer the attached report examining the impact of federal policy shifts on health insurance access and affordability. The report ...
I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.
Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...
For more than 25 years, people with cystic fibrosis and their loved ones have helped raise awareness, support, and understanding of CF in the United States through national recognition events. Today, ...
Watching my mother struggle with cystic fibrosis until she ultimately passed away was heartbreaking. I never knew anyone with CF other than the two of us. However, she instilled in me a deep sense of ...
BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...
Ten (almost 11) years ago, I became a young mom at the age of 17. Bringing my son home was such a bittersweet moment — I was so in love with him, but I knew my life as a kid was over. Two weeks later, ...
With advancements in cystic fibrosis treatments, individuals with the condition are now living longer and healthier lives, often well into adulthood. This progress has opened the door for many to ...
When my daughter, Elara, was diagnosed with cystic fibrosis at just 1 month old, my world shifted in an instant. As a mother to a 5-year-old, I was no stranger to the ups and downs of parenting, but ...
This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...
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