We have so far avoided a hospitalization for Gwen in the month of September! 👏 That is impressive as she has been admitted pretty much every single month for the past 9 months. Although, she is not currently feeling well ( #preschool - we are not surprised! 😉) but we are working with her medical team to figure out how to help her avoid having to go to the hospital as frequently, so let’s cross our fingers! The fact that she has oxygen at home now and can use that when she is sick is really hel
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We have so far avoided a hospitalization for Gwen in the month of September! 👏 That is impressive as she has been admitted pretty much every single month for the past 9 months. Although, she is not currently feeling well ( #preschool - we are not surprised! 😉) but we are working with her medical team to figure out how to help her avoid having to go to the hospital as frequently, so let’s cross our fingers! The fact that she has oxygen at home now and can use that when she is sick is really hel
10.9K viewsSep 21, 2023
TikTokoursweetgwendolyn
Gwen verbally said the word “momma” about three years ago, and then just didn’t say it again! But she did continue to use the #sign for Mom, so even though she wasn’t verbalizing it I still felt really happy about it. Then a few months ago a wonderful thing happened and she started saying mama again, and with gusto! 😃 And I’m happy to say this behavior has not regressed. She now says “mama mama mama, mama, mama, mama mama” in the cute way she does in this video ALL the time, all while signing i
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Gwen verbally said the word “momma” about three years ago, and then just didn’t say it again! But she did continue to use the #sign for Mom, so even though she wasn’t verbalizing it I still felt really happy about it. Then a few months ago a wonderful thing happened and she started saying mama again, and with gusto! 😃 And I’m happy to say this behavior has not regressed. She now says “mama mama mama, mama, mama, mama mama” in the cute way she does in this video ALL the time, all while signing i
85.7K viewsApr 10, 2024
TikTokoursweetgwendolyn
Gwen may be smaller than her two-year-old sister but she shows us that size does not matter! #leadwithconfidence #oldersister #downsyndrome #specialneeds
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Gwen may be smaller than her two-year-old sister but she shows us that size does not matter! #leadwithconfidence #oldersister #downsyndrome #specialneeds
36.5K viewsJan 6, 2024
TikTokoursweetgwendolyn
Since we have been home Gwen has been healing and still adjusting to her immunosuppression medications. They are tough on her little body, but the hope is that she can wean off at least one or two of them in a couple of months. I truly wish her heart surgery was wrapped up with a nice and tidy bow, but we are really just going heart scan to heart scan right now. We are eager to see the results of her next scan at the end of August. There are some areas of concern and only time can give us a bett
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Since we have been home Gwen has been healing and still adjusting to her immunosuppression medications. They are tough on her little body, but the hope is that she can wean off at least one or two of them in a couple of months. I truly wish her heart surgery was wrapped up with a nice and tidy bow, but we are really just going heart scan to heart scan right now. We are eager to see the results of her next scan at the end of August. There are some areas of concern and only time can give us a bett
221.6K views9 months ago
FacebookSweet Gwendolyn
Gwen has had back-to-back illnesses and has been in the #childrenshospital for the better part of 2 weeks. But her spirits are up and her flamingo #ootd makes us happy! Hoping she goes home today! Gwen doesn’t verbalize words often but is saying the word “up” more often, as she did in this video. It’s a small but great step toward full speaking someday! #downsyndrome #medicallycomplex #summerfit #toddlergirl #redheadtoddler
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Gwen has had back-to-back illnesses and has been in the #childrenshospital for the better part of 2 weeks. But her spirits are up and her flamingo #ootd makes us happy! Hoping she goes home today! Gwen doesn’t verbalize words often but is saying the word “up” more often, as she did in this video. It’s a small but great step toward full speaking someday! #downsyndrome #medicallycomplex #summerfit #toddlergirl #redheadtoddler
14.5K viewsJul 22, 2023
TikTokoursweetgwendolyn
Trying to make sure Gwen stays healthy has been kind of like watching her walk down this street - painstakingly slow and fraught with anxiety. (But isn’t her slow, careful self just the cutest?! I think she was a little worried about stepping on her shadow! 😂) This week she has a slew of sedated tests that we have been trying to get done since last August! We’ve gone to the hospital multiple times on the day of sedation, only to have the anesthesiologist send us home because Gwen‘s health was j
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Trying to make sure Gwen stays healthy has been kind of like watching her walk down this street - painstakingly slow and fraught with anxiety. (But isn’t her slow, careful self just the cutest?! I think she was a little worried about stepping on her shadow! 😂) This week she has a slew of sedated tests that we have been trying to get done since last August! We’ve gone to the hospital multiple times on the day of sedation, only to have the anesthesiologist send us home because Gwen‘s health was j
28.6K viewsMay 15, 2024
TikTokoursweetgwendolyn
Gwen’s recovery from her mitral valve transplant continues to go well! On Day 4, she was able to sit up in a recliner. We could tell she was feeling better when she regained interest in her beloved iPad, and then bopped her feet along to her favorite songs! Her gigantic yellow hospital socks made me giggle. 😂 These images are from Day 4, but we are actually now on Day 7 after surgery! Gwen moved from the ICU to the recovery floor. She has been up and walking around. Her body is still showing no
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Gwen’s recovery from her mitral valve transplant continues to go well! On Day 4, she was able to sit up in a recliner. We could tell she was feeling better when she regained interest in her beloved iPad, and then bopped her feet along to her favorite songs! Her gigantic yellow hospital socks made me giggle. 😂 These images are from Day 4, but we are actually now on Day 7 after surgery! Gwen moved from the ICU to the recovery floor. She has been up and walking around. Her body is still showing no
60.3K views11 months ago
FacebookSweet Gwendolyn
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Gwen has had 3 heart surgeries in 3 years of life. She is thriving, despite many odds. Down syndrome, heart issues…she is winning! #downsyndrome #heartwarrior #shecan
21.8K viewsNov 24, 2022
TikTokoursweetgwendolyn
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Our Sweet Gwendolyn (@oursweetgwendolyn)’s videos with original sound - Our Sweet Gwendolyn
15.7K viewsDec 17, 2023
TikTokoursweetgwendolyn
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For the third time in the last year, Operation “Save Gwennie’s Heart” is once again in effect. 😥❤️ After five long days, Gwen was finally well enough to have her breathing tube removed and come out of sedation. We were so happy to see her! This has been the hardest episode we have ever gone through with her, and she has had such a rough time. Her recovery is going to be very long and slow. She’s extremely weak and shaky, but she’s been able to spend time with all of us and even attempt a little
505.9K views5 months ago
FacebookSweet Gwendolyn
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It’s a big thing to have #downsyndrome in this world, but Gwen takes her place very nicely, don’t you think? #bigworld #smallgirl #joyfullife
113.7K viewsMar 6, 2022
TikTokoursweetgwendolyn
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Gwen is recovering beautifully. ❤️‍🩹 I think we can finally breathe normally! It’s taken five surgeries over seven long years, but we can finally say that Gwen‘s heart is working perfectly. 😭 Her mechanical valve looks absolutely great and the surgery went as well as it possibly could have. Within 24 hours after surgery Gwen was off the breathing tube, awake, and OUT of the ICU! Apparently Gwen’s all about setting some personal bests because that broke even her own record. 🥰 Despite how well
6.2K views3 months ago
FacebookSweet Gwendolyn
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Gwen celebrating Down Syndrome Awareness Month with a sweet sedation video
753.1K viewsOct 3, 2021
TikTokoursweetgwendolyn
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Our Sweet Gwendolyn on TikTok
Aug 6, 2023
TikTok
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Our Sweet Gwendolyn (@oursweetgwendolyn)’s videos with original sound - Our Sweet Gwendolyn
59.3K viewsNov 3, 2024
TikTokoursweetgwendolyn
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Every night after a bath, I work on saying “Ok Mama” with Gwen. She has #downsyndrome and it is harder for her to form the words. But she tries. And I try. And she will get there! She is doing amazing! #developmentaldisabilities #redheads #onhertime #lovemygirl #lillywhite
37K viewsApr 20, 2023
TikTokoursweetgwendolyn
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Traveling for work, and then coming home to Gwen. What a sweet reunion! #workingmom #downsyndrome #momlife #worktravel
9.4K viewsJun 17, 2022
TikTokoursweetgwendolyn
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Sweet Gwendolyn on Reels
3.6K views3 months ago
FacebookSweet Gwendolyn
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Gwen became a big sister! And what a great one she is. Here she is loving her new little sister. #sisters #sibling #sogentle
98K viewsMay 28, 2021
TikTokoursweetgwendolyn
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Geek Girl Gwen: Unlocking the Power of Toddler Speech
17.2K viewsAug 19, 2022
TikTokoursweetgwendolyn
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We made it to Boston and truly, you can’t feel the holiday spirit more than when you see medical professionals taking holidays away from their families to spend long days taking care of yours. If these experiences aren’t Christmas miracles, then I don’t know what is. Gwen is doing amazing. The altitude being at sea level has been amazing on her heart and lungs, and Gwen has been able to be off oxygen during the day. The biggest issue has been ICU delirium Gwen has experienced, including major tr
383.6K views4 months ago
FacebookSweet Gwendolyn
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For all of your home workout needs!💪 Source: Sweet Gwendolyn | Down Syndrome Association of Toronto (DSAT)
636 viewsApr 7, 2020
FacebookDown Syndrome Association of Toronto (DSAT)
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Each day Rowan and I walk to & from the hospital. We can’t all stay in the hospital room with Gwen, as much as we would like to. And Rowan has severe separation anxiety (after being in Boston for eight months in the last year, and after Gwen being hospitalized over TEN TIMES in the last year alone… How could she not?) so nanny Sam stays in the hospital with Gwen (she loves Gwen and that is her happy place) and I stay with Rowan in the apartment nearby. When the big snow storm hit Boston this wee
119.2K views3 months ago
FacebookSweet Gwendolyn
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Gwen is not impressed by expensive gifts. She loves the #christmastree , her ipad, and mom and dad! Those are some things that make her feel loved and content. She will miss the tree when we take it down! #downsyndromerocks
14.7K viewsDec 27, 2023
TikTokoursweetgwendolyn
gwendolynshow - Twitch
May 12, 2020
twitch.tv
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Any 80’s fans out there recognize this song?! It sure makes Gwen happy! #beinspired #originalmusic #downsyndrome #mydadisthebest
21.8K viewsOct 15, 2020
TikTokoursweetgwendolyn
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Gwen's Remarkable Recovery from Heart Surgery
20.9K viewsOct 30, 2022
TikTokoursweetgwendolyn
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Richie and Gwendolyn's Sweet Moment! #familymatters | Family Matter Show fan
721.1K viewsMar 22, 2025
FacebookFamily Matter Show fan
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Gwennie Overcoming Health Issues and Thriving | Heart Warrior Journey
11K viewsMar 12, 2023
TikTokoursweetgwendolyn
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Gwendolyn: The Star of All My Favorite Moments!
57K viewsJul 31, 2021
TikTokoursweetgwendolyn
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