There are tests your doctor can perform to help confirm if you have acute hepatic porphyria (AHP)
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Recognize Acute Hepatic Porphyria (AHP)
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Spoiler: Yes, Candace is fully covered — even if it’s 86°F / 30°C 😅 ☀️ Sun can hurt her skin, even through windows. Candace shows us what it really takes to get ready with Erythropoietic Protoporphyria. Sun protection isn’t optional—it’s survival. 👉 Living with a cutaneous porphyria? Join our community for tips, support & connection 💜 #UnitedPorphyrias #PorphyriaTogether #Porphyria #RareDisease #Research #RareDiseaseAwareness #ChronicIllness #skin #skincondition #skinprotection #sunexposure |
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Porphyria occurs when the body cannot convert compounds called 'porphyrins' into heme. Porphyria can affect the skin, nervous system, gastrointestinal system or all of these, depending on the specific type. Currently, there is no cure, but medical treatment and lifestyle changes can usually manage the symptoms. The one I have is Porphyria cutanea tarda (PCT) is a type of porphyria or blood disorder that affects the skin. PCT is one of the most common types of porphyria. It’s sometimes referred t
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